Family of Thalia-Beau Wright fundraising for Great Ormond Street this Valentine's Day

The family of a Scarborough girl who has are rare heart condition are fundraising for Great Ormond Street Hospital this Valentine's Day.

Wednesday, 12th February 2020, 3:12 pm
Updated Wednesday, 12th February 2020, 3:14 pm
Thalia-Beau Wright. Picture: Christine Johnson

Five-year-old Thalia-Beau Wright was diagnosed with Restrictive Cardiomyopathy, a condition which affects one in a million people, in November 2018.

There is no cure for the condition and her only hope is a heart transplant.

On Valentine's Day this Friday, Thalia's family are fundraising for Great Ormond Street Hospital (GOSH) and are appealing for the public to give the hospital some love as well.

Thalia's grandmother Christine Johnson said: "Thalia's care is under the amazing Great Ormond Street Children's Hospital and going forward as you can imagine, her treatment is going to cost hundreds of thousands of pounds.

"GOSH will be funding this but understandably we want to fundraise as much as we possibly can for them.

"We have a long long journey ahead with GOSH but the feeling of wanting to give back to them already is immense."

The family is starting with a raffle and donation day on Friday when they encourage those who are planning something special with a loved one to donate the same amount to the hospital.

Some ideas include:

- Matching the price of a Valentine's card as a donation

- Donate the value of a romantic meal in a restaurant

- Giving the cost of a round of drinks with a loved one

Christine has set up a Just Giving page for donations to the Great Ormond Street Hospital's charity made in Thalia's name.

She is also running a raffle evening at the Angel Inn on North Street from 8pm on Friday evening.

Money raised from raffle tickets will also be donated to the charity and local business have given prizes to be won.

More information can be found on the Thalia's Beautiful Little Heart Facebook page.