Brave Scarborough girl Thalia: Her legacy will live on as family launch foundation to help sick children

The courageous little girl suffered from restrictive cardiomyopathy and died in August while awaiting a heart and lung transplant.

Determined to carry on the little girl’s generous spirit, her family are launching the Thalia-Beau Foundation on November 11 – what would have been her sixth birthday.

“Thalia was one in a million,” said her grandmother Christine Johnson.

“She was beautiful inside and out.

“She always wanted to help others and had the most beautiful nature. She was always wanting to buy gifts for the nurses.

“We want to use the foundation to continue the beat of Thalia’s beautiful little heart.”

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The money raised will go towards helping other Scarborough families caring for very ill children, such as by putting together care packages for families with youngsters being treated on children’s wards.

Funds will also go to children’s hospice Martin House where Thalia spent her final days.

“We call the team there angels on earth because they just put their arms around us,” said Christine.

In time, she said, they plan to help families who have lost children as well.

The first fundraiser will be the sale of a 2021 calendar, which will be available from several Scarborough businesses including Hays Travel on Aberdeen Walk and The Angel Inn on North Street.

The family are also keen to carry on their tireless campaigning to raise awareness of the desperate need for organ donation.

Thalia was on the urgent list for a transplant and her doctors, including a team at Great Ormond Street Hospital in London, were doing everything they could to try to find her a donor.

But she became very poorly very quickly, and there was nothing that could be done to save her. “Even though Thalia’s call didn’t come in time, we know for a fact that she has helped save other lives,” said Christine.

For details on the foundation or to register interest for a calendar, visit www.facebook.com/thaliasbeautifullittleheart or email [email protected]